Thursday, October 22, 2015

Up Researching... AGAIN! (Edited to add)

     I've got my trusty little sidekick here researching possible syndromes with me.She just doesn't wanna sleep tonight! we must be taking turns.  
  As I'm sitting here indulging in my love/hate relationship with google. I cant help but recall all the things that MIGHT be a symptom of something. When she was born her Skull bones (is that what you would call them??) were still overlapped and she had a very small soft spot. I remember The pediatrician saying even tho it was small, It was there and not closed, so she wasn't getting too concerned about it. But should we have been?? In fact her skull is still slightly overlapped. looks like another thing to add to the list of questions for Dr.CL. She has a few other slight things as well that Ill be bringing up as well. Hopefully they're all just symptoms of me overreacting vs. actually being an issue. You know how google can be. Every little thing is suddenly something horrific. Example: Reading that a symptom of one syndrome is floppy ears. I of course immediately check Celina's ears. One is just fine while he other doesn't seem to have much cartilage in the top portion. Let the worrying commence. Dang you Google!!!

   I'm really hoping I get the ultrasound results before the weekend. I've said it a million times and I'll say it again. Waiting and the unknown are THE. WORST. PART. At least when I know, there are actions to take and i'm not unnecessarily freaking myself out. If I need to wait until monday I might just lose my mind. At least I'm somewhat busy with FUN stuff this weekend. Ryan has a work party thingy saturday night. I was just gonna take the kids along. But today decided to spring for a sitter. I was able to get my younger sister to come stay over. WOOT WOOT! lol. Then sunday is church, so maybe it wont be so bad... but still it would be nice. Maybe Ill just give them a call tomorrow to get a general idea on when I might be getting them... I was given a direct line to my doctor. Huge plus! Now I don't have to do the whole run around thing where I call, leave a message. get a call back by a random nurse who asks me to basically repeat what I put in my message, to then have to wait on a call back again as she tries to hunt down an answer... uggghhh! always so frustrating. I guess that means things are a little more serious tho... Pros and cons. always hand in hand.

    I've been doing very well the past few days! It probably has a lot to do with how busy I've been! We'll see how it goes tomorrow when I have nothing going on and have time to REALLY think about it. Maybe I should find something to do.. I dont think im ready for it to sink in yet. And there's still hope her issues are at their extent. Dwelling on it might cause me to lose hope... yep. That's it. Gotta find something to distract myself tomorrow! Maybe Ill just go find a new good book or series to start reading! Suggestions? Reading is definitely one of my best escapes. Always has been!

   Welp. Now i'm just rambling so I suppose I should get this little punkin off to bed! Maybe I'll even get some sleep as well!?




    I posted a link that kinda shows why were now looking at a syndrome as a result of the coloboma.
https://nei.nih.gov/health/coloboma/coloboma
 
****Edited to add That I found this. Both are signs of CHARGE or fetal alcohol Syndrome, and I Definitely didn't drink. Celina has both of these, tho with the ear im only noticing one side :( http://www.modernhandreadingforum.com/t410-the-hockey-stick-crease-a-characteristic-in-charge-fetal-alcohol-syndrome

 




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