Its Finally here!!!
This morning started off with Meeting some of Celina's Therapists. There was a Special Education teacher. She will be watching Celina's overall development including physical and motor development and trying to keep her on track with kids her age throughout the years. There was also a D/HH (deaf/hard of hearing) Teacher. She will be helping Celina progress with whatever communication method we choose, wether it be sign language, Verbal/Oral, Cued Speech, or Complete/Total communication (verbal and signing). A Blind/Visual impaired teacher who will help us with ways to use the vision she has to its highest potential and motor development etc. There was also the Initial intake facilitator, but she will be here only a few times here and there. The Speech therapists wasn't able to make it out today, so hopefully we'll be meeting her soon. These ladies are seriously amazing. They are so understanding and explain everything sooo clearly. They're also chalked FULL of many different resources that I cant wait to tap! In the blink of an eye they had been here for over 2 hours! I was a little disappointed our time was already up lol but I just need to wait until next week when they come again. Right now they're all coming together to establish a "baseline" or initial evaluation for Celina. From there we'll develop an IFSP (Individual family service plan) Where each teacher will work individually with her in their own area of expertise. Cant wait to see this in action and learn all sorts of new things to help my baby girl!
Later in the afternoon we had Celina's repeat ABR to tell us exactly how much hearing loss Celina has after the fluid was drained by tubes. In order to get the best results Celina needed to be asleep for the test, it was recommend bringing your child tired and hungry. So I gave her her last bottle at 11;30ish and kept her awake until the appointment. She was NOT a happy camper. It was quite difficult to keep her awake! lol but I managed. Of course when it came time for the test I gave her her bottle to get her to go to sleep and She REFUSED! Little sassy pants was NOT giving in! finally about an hour later she couldn't fight it anymore and to sleep she went!
Once the testing was complete, Dr.J gave us our results. Celina has profound hearing loss in both ears. She is completely deaf. At the first ABR they predicted she would have moderate hearing loss after tubes... Not so much. lol. I cant say I was shocked (banging pots and pans next to her head ring a bell? lol) But I was definitely surprised! I guess I thought if she was completely deaf she wouldn't make any babbling sounds at all and would sound very mono-tone. Dr.J explained, that will come around 6 months, she will start to sound very flat. Dr.J then explained our action plan. We're going to try hearing aids, and if those don't seem to work, (there's a strong possibility with profound hearing loss) we will then start looking at cochlear Implants. I don't know too horribly much about the implants, so looks like I have some more research to do! The hearing aids will be a lot of trial and error in the programing to see if they are working for Celina. She said if at about 7-8 months we don't notice a significant difference we will start looking at the implant. They also start putting them in at this age so works out perfect! Also, sign language, here I come!!! Nov. 13th she will get her first pair of hearing aids. They took molds of her ears at the end of her appointment today. I'm hoping sooo bad she will be able to hear me!!!
So.... not to bad of a day! not the best news, but not the worst news either!
It could still always be worse. :)
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