mysproutsearglitch: Post op updates

Hey guys! I may sound like a broken record to those of you who follow me on social media as well as here. Anyways surgery went well. I was able to calm myself the day before and the day went relatively smooth. After surgery in post op her O2 stats kept dropping and she had to go on oxygen, but they were able to get it under control. This worries me a little about the next surgery (she will be having a few more on her lip, heart etc.) But the soonest surgery will be the end of this summer so I don't need to worry quite yet. With CHARGE and surgery, they have found each surgery becomes more and more risky. This was her first complication, small thank goodness but a complication nonetheless. So with what's stated above its why im so concerned for the next. In this surgery they also lasered her lip and replaced her left ear tube at the same time. We were sent home with a bag full of meds. They accidently had us putting drops in the ear they put a tube in vs. the surgery ear. 3 days post op her surgery ear was gushing blood and dripping down her arm so we brought her in. Turns out we were supposed to be putting the drops in the surgery ear! ugh! anyways glad it was an easy fix! Celina was a little feisty and clingy out of surgery. Which was to be expected. There were some days I couldn't put her down at all. Its like she would get a look of panic and cling desperately and try to climb up my legs to be back in my arms. I felt so bad! Needless to say I had quite a sore arm and neck for a while. Not to mention nothing got done. Anyways! Today shes doing great!! May 5th we have her post op to get cleared for activation, and may 11th we get to turn this baby on!!! So excited!! the weeks seem to be dragging! I cant wait to see her react to all her toys when she realizes they all make noise! It'll be like she got a whole bunch of new ones!
So with cochlear's there comes speech therapy and brain mapping. Her activation day they will be doing a bit of the mapping, and then again on the 25th of may. we will be doing Speech once a week in the cities as well. We also had some outpatient PT (physical therapy) and OT (occupational therapy) Evaluations. Some of the results were hard to see. Celina is on the level of a 7 month old in some areas and a 9 month old in others. Needless to say we will be adding both OT 2X a week and PT 2X a week to what we already have. Thats 8 sessions a week! Kind of makes you wonder when shes supposed to just act like a kid. At the same time tho I understand why its needed. We hope to get this girl walking by the end of the year! Id be happy with her even standing independently. Speeking of standing, we're waiting on her to do that in order to get a good x-ray of her spine to get an exact on how bad her scoliosis is. So I'm really pushing for it. Anyways!! Thats all I have for now! Thank you everyone so so so much for your thoughts and prayers! and thank you for including Ryan, Eli and I in them as well. We needed them as well! My next update should be a video of Celina getting her CI turned on! Stay tuned! :)