Sunday, August 14, 2016
Seizures
Good evening everyone! Hope you all had a great weekend! Mine was..... Eventful. For those who don't know, you may be able to tell by the title that Celina had some seizures this weekend.
Friday started out pretty normal. I had my younger sisters over (E&K) and Eli wanted to go to the park. So around noon off to the park we went! Eli and Celina both were having a great time! Celina went on the swing for a bit, as she has many times before, but mostly sat on the bench with me and just watched Eli and her aunties run around. Around 2 we left and headed for Wal Mart to pick up a few things. At Wal Mart Celina vomited quite severely. Before we put her on thickened liquids she did this frequently so I didn't think much of it. Just thought "oh shucks. Thickening the liquids isn't helping with the vomiting." We left Walmart and she vomited again in the car, again nothing new or alarming in the fact it was happening, tho when it happens in the car its always scary due to her being strapped in and a choking hazard. So we get home, Celina rolls around on the floor and plays with toys as I get dinner ready. We all sit down to eat, I get Celina in her highchair, give her her food, and we all get to eating. As were all eating and chit chatting I'm playing with Celina, trying to encourage her to eat, and she starts shaking her head. Those who are around Celina a lot know this is completely normal, she does this when shes super excited. So shes shaking her head and i'm giggling at her weirdness, when she starts shaking her head a bit more jerky and her eyes start rolling back into her head and going back to normal over and over again super fast. I quickly asked everyone if they were seeing what I was seeing, but by the time they looked it was over and she was back to being her silly self giggling and banging on her trey. So I brushed it off as her eyes maybe losing focus or maybe getting dizzy. After she was done eating E went to give her a bath and E witnessed it happen again. I still wasnt to concerned as what she was doing was only lasting seconds. Then she started vomiting again. Two hours later The weird shaking happened again. This time more severe and lasing longer. Followed by extreme amounts of vomit. Now I was worried. So I take her temp, she doesn't feel warm but is shivering so i'm panicking. Normal temp. I called the Nurse line and told them what was going on. They advised me to go strait to Children's as it sounded like seizure activity. All the while Celina is still vomiting almost non stop. I get Celina in the car, Have my sister K in the back seat with her so that she could push Celina's car seat in an upright position if she were to vomit on the way and off we went. The drive there was horrible and nerve wracking. Celina vomited 12 times in the 45 min drive to Minneapolis Children's. Violently vomiting, choking, gagging, I couldn't get there fast enough. She was soaked in vomit when we got there. We even had a towel wrapped around her to catch any vomit and that was soaked thru. Dripping. we get to Children's and get sent strait back. (those who were in the waiting room were not pleased and were yelling at us that we were going ahead of them) We meet the doctor and hes extremely concerned. Orders a panel of blood work and admits us. At this point Celina is already severely dehydrated so they want to put an IV in her for fluids. Let me tell you. Celina's a fighter!! It took for of us to hold her down so they could get a line in. It took forever! She screamed like never before! It was heartbreaking!! Once they did get it in they blew her vein. Her Screaming decibel tripled. So we had to try the other arm. Now Celina is so extremely tired and doesn't have much fight left so it goes a little smoother. She was able to fall asleep after. My poor baby. I felt so bad for her. Trying not to cry was HARD. We finally got brought up to our room at 4 am. First thing in the morning ( normal morning) a team of doctors came in and went over the game plan. They debated starting her on anti seizure meds right then, but decided to wait until after she had an EEG to see what the results were instead. When Celina woke up she seemed back to her normal happy self. The only thing that bothered her was, they put her IV hand in a splint and wrapped it, so she couldn't pull it out, (but boy did she try) so she couldn't use her hand. She would lift it to her face, look at it and make a little annoyed cry. It was actually kind of cute. Tho I felt bad because it was her signing hand. Later that morning they pulled more blood, Those came back relatively normal. And we went in for a 20 min EEG. By this point Celina was sick of being poked and prodded so she didn't like having probes being stuck to her head AT ALL! She kept ripping them out. So once again we had to hold her down. The Neurologist came to give us the results of the EEG a while later. She said that Celina was super wiggly during the EEG but from what she could see it looked fine. That shes not sure if Celina was having seizures or not, so she wasnt going to put her on meds quite yet. She also asked me to try and catch it on video if it happened again. She asked about Celina's face twitch and said that can also be seizure type activity. Also if it happened again we need to go back in for a 3hr EEG. Other than that we got no answers and were sent home. No answers to her Non stop vomiting either. But she had stopped and was holding down milk, so they felt no reason to observe her longer. So. Just another thing to look out for, worry about, and probably never get clear answers on.
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