As you know, I was waiting intently for both Celina's Spine X-Ray and ECHO results. Well I got them back yesterday and it looks like Celina has a 27 degree thoracic curve in her spine. Infantile scoliosis is rare but we seem to always hit the jackpot on raritys! Because Celina is so young and has many years to grow, this means her spine will get continually worse. So we need to jump on it right away with treatment. If she was say 15 it wouldn't be as concerning and they would just keep an eye on it as she grew for the remaining few years. Treatment options for Celina are a back brace either full time or just at night, or spinal surgery. If she has surgery they would place rods in her spine to hold it strait, bolt them on and hopefully keep it from curving further. Unfortunately there is no way to reverse the curve she already has so she will have that for life. We see an orthopedic surgeon on May 4th so I'll update more on this then.
ECHO. The ECHO results came back good!! So far no thickening of the muscles/walls and no abnormal sized heart chambers!! YAAAY! I can breath again!! We have to go back in 3 months to re check but I'm feeling pretty positive!!! Thanks all for your thoughts and prayers! It was a rough couple of days there.
Here is a picture of an example of what Celinas Spine looks like:
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