Nephrology, Another ECHO, Scoliosis and Hip Dysplasia

  Good evening all!!! Anxiety is high at the moment as we're waiting on a few nerve wracking test results. Celina Had her Nephrology appointment on Tuesday! They took her blood pressure on both her arms and both her legs. Good news is her blood pressure was somewhat decent and is not ready to diagnose her with hypertension quite yet. YAAAY! Lets hope it stays that way! Bad news.... I think... Not sure yet... So the BP readings in her legs are supposed to be slightly elevated in comparison to the BP readings in her legs. Well Celina's leg BP readings were actually lower in her legs. So Dr.K (Nephrologist) Wanted to do another ECHO (ultrasound of the heart) on her to see if the muscles and walls of her heart are 'thickening'. This is called Hypertrophic cardiomyopothy or HCM. This could mean Celina's heart would enlarge and other possibilities. Worst case scenario would be death. I usually have a pretty good gut instinct and its usually dead on. This time? My radar is gone. I have no instinctual answer. I can just hope and pray. Im a ball of nerves. I really don't know what else to say on this subject, nor did I want to even post it given we have no idea on the possibility of her having this. I dont want to freak anyone out but at the same time, I need to "get it out". It makes me sick to my stomach to think about. I just have to push it out of my head or I'll never stop crying. I just really hope im worked up over nothing.

   Today we saw Dr.L (pediatrician) for Celina's Spine and Hips. We scheduled an ultrasound for her hips to see if she has hip dysplasia, Planned a swallow study if her eating has not improved within a month, and on our way out (after the Pedi visit) stopped in Radiology and had an X-ray of her spine done. The X-ray tech asked if id like to see the X-ray and we both observed how extremely Crooked her spine was.

   We had A (deaf mentor) over tonight and while she was here I missed a call from the pediatrician. I didn't notice his message until 8pm and he called at 7. He wanted me to call him back but when I did he had already left for the night. Im kicking myself!!! What did he call for???? What results did he want to give? Spine or heart? why was he calling way after clinic hours??? Why not wait until next appointment or next day as he usually does??? AAAAAHHHH!!!! I hate this.