This eye twitch....

  We got celinas ears re-molded for her hearing aids today! This time were getting solid pink molds with purple sparkles, and pink tubing! Turns out the poor girl has a double ear infection  lots of goopyness in her ears! I scheduled Celinas nephrology appointment today (kidney specialist) and we will see them in January. Very anxious about it. My eye hasn't stopped twitching for about a week now. Very infuriating in itself. Think I'm a little stressed out. Not necessarily doing any better emotionally right now, but not doing any worse, so I guess that's a plus.

  

I had a wonderful lady reach out to me about Celinas situation, who has a son with almost identical issues. Her son already has a diagnosis. And that's comforting to know. It helps give me an idea of what to expect, what to ask for, etc. I seriously can't thank this mom enough! It felt sooo good to chat with someone who knows EXACTLY what I'm going through and how emotional it can be. It's one thing to know that there are others going thru the same thing. But to actually talk to someone who is, is a complete different story. It's just so amazing how caring a complete stranger can be and will chat with you for hours! Celina see's the geneticist next week! Cannot wait to get answers and move forward with what steps will go with whatever diagnosis she receives.

  

I would also like to apologize. I didn't call Anyone, family or otherwise, with Celinas news on her blood pressure. I just couldnt. I wasn't, and still am not ready to talk about it in person. I just end up breaking down again. And then the crying doesn't stop. And I don't like crying at people. It's just too uncomfortable for me. Im sure soon it will become a little easier. Please keep us in your thoughts and prayers. So thankful for support I have received.

And to end on a happy note, here's a shot of adorableness