Celina Received her hearing aids last friday! She's officially been hearing things for a week now!! Yaaay!!! She's definately a lot happier :) at first she was extremely fussy, but that was to be expected. We don't know exactly how much she can hear yet. They wont be able to determine that until she is able to sit up on her own, and turn her head to sounds. Im very curios to know how much she is hearing. We get a reaction every time we put her aids on. The second they kick on she goes still and just stares and stares lol. Today is the first time I saw her flinch from a loud noise!! Seriously amazing to see her reactions to things. Even her behavior has changed! Like mentioned above shes sooo much happier! She'll babble and have a little chat with you lol also her cry and voice is significantly louder. She now has more pitches in her voice than before. I'm seriously amazed at what a difference something as simple as hearing can make. The things we take for granted right?
Such is life, there are always negatives to go with positives. Luckily the positives outweigh the negatives in this case. The hearing aids can definitely be frustrating. Its quite the routine to put them together, test the battery, test the aids themselves, Put them on, put goop in her ear, try and get them as tightly in as possible, tape them into position... All that jazz. This happens after every nap and every morning. Evening is taking them apart, washing earmolds, blowing air through them to remove moisture, putting pieces in correct storage containers (to also remove moisture).... Its just a long process that I need to get used to. They also squeal quite a bit. If you cover the microphones on the aids they squeal. So that means holding her against you or her turning her head to the side. If they're coming out they squeal. Sometimes they just squeal. Lol I've definitely wanted to just rip them out sometimes. And they are LOUD. They're turned up so loud you can hear yourself talking thru them! And they are most likely going to be turning the left side up due to no reaction when just that one is in. They also fall out. Even with tape and all that. So... when they fall out and you don't notice right away, curious little 3 year olds end up finding them first. And apparently the sparkly earmold looks delicious because then said 3 year old needs to taste it. Yes. He just took a bite out of one. Thank goodness it was on an area where it did not affect the use of it, but still. how annoying. lol
We're all definitely having fun experiencing this with her. Even Eli seems to notice somethings different with her. He hangs out with her and plays with her a lot more now. Maybe because he gets somewhat of a reaction from her as well. Its been a very emotional week. Sometimes its just so overwhelming. Just to much. And not necessarily in a bad way. I'm overjoyed with her hearing aids. Its maybe the fact that now she has them and they're so real. Not just something we're getting in the future. Theyre here. Sometimes this doesn't feel like my life. I'm just reading this in a book, or someone else's experience. Sometimes it just doesn't seem real. Like im living in a dream. And when it hits me that this is VERY real, I'm not necessarily sad... Im overwhelmed. Lost. Wonder how I pull through everyday. How am I doing this?? Then I realize I cant think about it too much. I can just do. I just do it. And live it. and one day It will just be my normal and I wont have to try not to think about it too much. I dont want to sound like i'm having an awful time and this is the worst thing ever. I think most of the time I handle it very well. Just sometimes this stuff creeps up on me and out of nowhere I'm sobbing and dont necessarily understand why. I think i'm just overwhelmed.
I of course had to bling 'em out :)
You don't know me but I've been following your blog since you posted the link on Baby Center. I was so glad to read your post today that everything is going well with the hearing aids. I love the sparkles!
ReplyDeleteYour attitude is really admirable. I think God uses you as an example to people like me who need to reexamine their own thoughts and actions.
What is the next step in this process? Do you have any specific prayer requests? Either way, your whole family will be in my daily prayers and I do know God has great things in store for your sweet girl!!
-Lindsay C., Dallas TX
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DeleteThank you so much for your kind words �� our next step is to see how much she's hearimg in the coming months and if it's not "enough" we will look into cochlear implants and see if she's a good candidate for them. We know given her reaction to the right side being in alone there is the nerve to put the cochlear on, not so sure about the left side. When we get to that point she will have an mri to see if it's there.
ReplyDeleteThank you so much for your kind words �� our next step is to see how much she's hearimg in the coming months and if it's not "enough" we will look into cochlear implants and see if she's a good candidate for them. We know given her reaction to the right side being in alone there is the nerve to put the cochlear on, not so sure about the left side. When we get to that point she will have an mri to see if it's there.
ReplyDeleteYou also don't know me but I've been reading your blog from time to time since you posted it as well, you are seriously an admirable human being. And your daughter is very lucky to have you as her mom. I can't stop crying after reading your updates. We really do take things for granted. I'm sad but very grateful, I didn't find out I was pregnant until 6 and a half months and I drank a lot in those 6 months, I was very terrified of how it would affect my baby and I didn't know if I'd have the strength if I were to go through something like this. My baby turned out healthy, thank god. But it makes me sad to hear of someone who took care of themselves throughout their pregnancy is in this situation such as your self. Regardless, you are amazing, strong, and doing a great job! Sending love and prayers your way. And btw super cute babies.
ReplyDelete-Jennifer from California