Friday, November 20, 2015

Week1 with hearing aids!


  Celina Received her hearing aids last friday! She's officially been hearing things for a week now!! Yaaay!!! She's definately a lot happier :)  at first she was extremely fussy, but that was to be expected. We don't know exactly how much she can hear yet. They wont be able to determine that until she is able to sit up on her own, and turn her head to sounds. Im very curios to know how much she is hearing. We get a reaction every time we put her aids on. The second they kick on she goes still and just stares and stares lol. Today is the first time I saw her flinch from a loud noise!! Seriously amazing to see her reactions to things. Even her behavior has changed! Like mentioned above shes sooo much happier! She'll babble and have a little chat with you lol also her cry and voice is significantly louder. She now has more pitches in her voice than before. I'm seriously amazed at what a difference something as simple as hearing can make. The things we take for granted right?

  Such is life, there are always negatives to go with positives. Luckily the positives outweigh the negatives in this case. The hearing aids can definitely be frustrating. Its quite the routine to put them together, test the battery, test the aids themselves, Put them on, put goop in her ear, try and get them as tightly in as possible, tape them into position... All that jazz. This happens after every nap and every morning. Evening is taking them apart, washing earmolds, blowing air through them to remove moisture, putting pieces in correct storage containers (to also remove moisture).... Its just a long process that I need to get used to. They also squeal quite a bit. If you cover the microphones on the aids they squeal. So that means holding her against you or her turning her head to the side. If they're coming out they squeal. Sometimes they just squeal. Lol I've definitely wanted to just rip them out sometimes. And they are LOUD. They're turned up so loud you can hear yourself talking thru them! And they are most likely going to be turning the left side up due to no reaction when just that one is in. They also fall out. Even with tape and all that. So... when they fall out and you don't notice right away, curious little 3 year olds end up finding them first. And apparently the sparkly earmold looks delicious because then said 3 year old needs to taste it. Yes. He just took a bite out of one. Thank goodness it was on an area where it did not affect the use of it, but still. how annoying. lol


   We're all definitely having fun experiencing this with her. Even Eli seems to notice somethings different with her. He hangs out with her and plays with her a lot more now. Maybe because he gets somewhat of a reaction from her as well. Its been a very emotional week. Sometimes its just so overwhelming. Just to much. And not necessarily in a bad way. I'm overjoyed with her hearing aids. Its maybe the fact that now she has them and they're so real. Not just something we're getting in the future. Theyre here. Sometimes this doesn't feel like my life. I'm just reading this in a book, or someone else's experience. Sometimes it just doesn't seem real. Like im living in a dream. And when it hits me that this is VERY real, I'm not necessarily sad... Im overwhelmed. Lost. Wonder how I pull through everyday. How am I doing this?? Then I realize I cant think about it too much. I can just do. I just do it. And live it. and one day It will just be my normal and I wont have to try not to think about it too much. I dont want to sound like i'm having an awful time and this is the worst thing ever. I think most of the time I handle it very well. Just sometimes this stuff creeps up on me and out of nowhere I'm sobbing and dont necessarily understand why. I think i'm just overwhelmed.

I of course had to bling 'em out :)


Sunday, November 15, 2015

Hearing Video!!

Ok so this is not the first time she heard. We thought we were recording the first time we put them on her but turns out we weren't lolk. SO! After being asleep and having them off, I took a video when we put them back in! Still got a good reaction :) The first time She was fussing as we were putting them in and immediately stopped once we turned them on. She was looking around like "What is this!!!" Its looking like she hears more from her right ear than her left. So they'll most likely be turning her left aid up a bit. It was a looong appointment! I was taught how to put them in, clean them, take them out, test them, etc. I of course can't wait to bling them out! lol Anyways! Here's the video :D  If your on your phone this video wont work, use this link

 https://www.youtube.com/watch?v=LjR2OgNudjo


Wednesday, November 11, 2015

This week so far... ECHO, MNH&V, and sign class

  So this week has already been quite busy! Monday we had our first sign language class! Was definitely fun and can't wait until next monday!

   Tuesday we had B from MN hands and voices come to our house and kind of give us more information and resources for children who are deaf and hard of hearing. B herself also had a hearing loss, so it was fun to try out my signing with her. She brought Celina a snuggly handmade blanket that their organization makes, so we might just see celinas picture on the MN HANDS AND VOICES facebook page or their news letter. 😊 B also set me up with some family's in our area going thru what were experiencing, and is setting us up with a deaf mentor! Seriously can't wait to meet these people and hear their experiences.

  Today we had Celinas ECHO on her heart! Good news is her heart looks healthy! Yay! She does have a Patent ductus arteriosus (PDA) which is a valve that connects the aorta and pulmonary artery when baby is in the womb. Once babys are born it's supposed to close within an hour to a day or so after birth, but Celinas didnt. They're just going to keep an eye on it and if it hasn't closed on its own by the time she's one they'll go in and plug it up! So! Not necessarily bad news! I did look tho to see if it's associated with CHARGE syndrome and it looks like it is 😕 guess we'll just leave that in God's hands and worry about it when we get to it!

  We get celinas aids in 2 days! Will definitely be posting a video! Can't wait!

Wednesday, November 4, 2015

Busy Busy!


   So its been a pretty busy couple of days with halloween, therapy and all that jazz. Celina was a kitty and Eli was Harry potter for halloween! Eli definitely thought trick or treating was the Bees Knees. Celina just Snoozed in her stroller. We got lucky it was so warm! We all got to go as a family instead of one of us staying home with baby.

     Not much for updates yet. We have vision and special education therapy tomorrow morning and then I think were clear for the rest of the week! Yaaay! Ryan of course, is going north for hunting opener, but Celina and I will be at home helping my mom with her craft sale! Always fun and cant wait!!
   I talked with a lady from MN Hands and Voices and will be meeting with her next wed! She is deaf and also has twin daughters who are deaf! Cant wait to meet her! She is going to be helping us get in touch with other parents of deaf children in our area. Parents who know exactly what we're going through. They also plan many different deaf events and are a great resource for any info. Great Organization.

   So we've Been keeping at it with our sign language learning.... (is that a legitimate sentence? haha) and feel we've already come quite far. I keep using what I do know in daily conversation hoping soon it'll feel more natural. Ryan and Eli are still impressing me with how fast they're catching on. Ryan watches some videos with me. But mostly he learns by the question sheets I give him to quiz me on. Eli signs a new word just about everyday!! WE GOT THIS!!! :D :D :D

    9 more days till hearing aids!!!