"Whats wrong with her?". I was asked this, this morning by a complete stranger at the grocery store. Not exactly sure how to feel about it. For me its slightly unsettling and I cant pinpoint exactly why. I think its safe to say tho, that Celina is starting to look 'different'. I did started to notice a change in her appearance lately. In fact just last night I was telling my family that I thought Celina was starting to look more and more 'special'. (Is that an appropriate way to even explain it? special? I don't know how else to.) But thought it was just noticeable to me and family who see her often and know her history. Apparently I was wrong. The little old lady who asked was genuinely curious, so I wasnt offended. She was very sweet and genuine. Maybe the unsettling part is knowing I'll probably be asked this throughout Celina's life? Or the fact that if she was older and could hear she would understand what the word 'wrong' means and are people going to ask me this with her right there? Because she looks different are they going to assume she doesn't comprehend whats being said? That would be downright insulting and ignorant. If she gets her cochlear she will be hearing these conversations. If and when this happens I don't want Celina to get the notion something is "wrong' with her. God made her the way she is for a reason. He makes no mistakes. Maybe I would have felt better if she had asked using a different word than 'wrong'. Perhaps asking "what does she have?" would have made me feel better. I dunno. You don't realize how much impact a word can have until it does. I sure as heck didn't.
We had Celinas Heart appointment earlier this month. Her PDA is still there. Last time we were at the heart clinic we had no clue to any of celinas issues besides being deaf. So after filling Dr. V with her medical history and him looking at her records, He decided, because its not very large, he would like to see Celina grow a bit more, and get past some of her other surgeries before doing an invasive heart operation. He said we will probably do it next year unless Celina has more bouts with Pneumonia or RSV. If she does, he will do so as soon as possible. Im so glad I don't need to stress about a heart operation at the moment! Im also not sure anymore how he plans on closing the hole. If her medical history for some reason changes how they would do it. Only because he used the words "invasive heart operation." whereas the first initial appointment he said what they were going to do was not a big deal. I wish I had thought to ask. I was on information overload.
Well that's all we have for now for updates! hopefully things continue to go smooth in the health department! Otherwise, still fighting for that CI!
Because, who doesn't love looking at a chunky baby??
