Good evening all! Just got done putting Miss Celina down for the night. She was being really odd and wouldn't go down like she normally does, so I rocked her and she was out in two seconds flat! She fussed again when I put her in her crib but immediately fell asleep when i patted her stomach a few times. Just odd for her.
Anyways! Swallow study. Unfortunately my brain was fantastic this week! (insert sarcasm) I was positive the swallow study was on Wednesday so on Tuesday night I got the paperwork out to look over to make sure I brought everything I needed and how long to withhold food. Well.... Turns out the swallow study was that day and I had missed it!!! UGGH!!! I was waiting so long for this one!!! I even had it in bright red on my big calendar hanging on the wall for the right day and I still somehow missed it!!! So we rescheduled for the beginning of August. Celina has been recovering quite well from her Pneumonia! Shes still a bit raspy in the breathing but no more fevers and her cough is completely gone! yaaay!
Cochlear. So we saw Celina's Surgeon Dr.M on the 8th. We were supposed to schedule Celina's surgery that day but were unable to due to insurance. Apparently due to some glitch or "technicality" in the system they will cover the surgery and everything that go's with the cochlear but not the cochlear itself!! Just One cochlear runs for 40 grand!!! YIKES!!! So we have a few options to look into but it looks like its going to take a bit longer to get this rolling than expected. A few days after seeing Dr. M I met with the cochlear team of Audiologists. At this appointment they went over a lot of questions I had, Showed me 3 devises that I would be able to choose from and some pamphlets from different cochlear brands. They were definitely interesting!! I guess I don't know what I was expecting them to look like, but I was surprised at how small the piece that actually goes into the cochlea was! The only thing I'm NOT looking forward to is, we will have to go to Children's once a week for therapy's. This is on top of her already four therapists, Dr. appointments and everything else! I'm gonna be one busy tired momma.
Celina's Going to be 1 at the end of this month!!!! Can you believe its already been a year!!!??? I cant believe how fast it went!! My princess is growing up! For Celina's birthday we're throwing a huge Birthday/Fundraiser for the CHARGE Syndrome Foundation! I'm really excited, but man its a lot of work!! I feel this time I may have bit off a bit more than I can chew! With Celina's appointments/Therapy's, and then were in the middle of a house remodel, which we would like to have the majority done before the party, AND the fundraiser, its safe to say I'm not getting much sleep! Haha! Sometimes I wonder why I do this to myself!?? Oh well! It's for a great cause!! So for those of you I don't have on Facebook and live within the area you are more than welcome to come!! Otherwise if the rest of you would like to donate in honor of miss Celina's first Birthday you can do so here! http://csfeighthannualcifc.kintera.org/celinamurney ANY help is appreciated!! All funds will go directly to the CHARGE Syndrome Foundation!
Cant wait to post pictures of the party!! Until then have a great rest of July and thank you all for your support!!
http://csfeighthannualcifc.kintera.org/celinamurney
