Thank you...

Thank you god for giving us such a blessing.

Thank you family for being so extremely supportive. I honestly can't thank you enough!

Thank you Ryan for being the BEST husband and father we could ask for. I love you more than I could ever show you.

Thank you Lacie for being such an amazing friend and sounding board. Even when you have your own life crisis' going on. seriously. THANK YOU!

Thank you everyone for your prayers.

Thank you Celina for showing me life through new eyes.

Thank you to all Celina's Therapists for working so hard with us.

Thank you NP for teaching us Sign Language in your own private time.

Thank you god for giving me perspective and a positive outlook.

Thank you parents of other CHARGErs who have reached out and advised me and provided support through this journey.

Thank you to my wonderful Mom and Mother in law who take time out of their day, and days off work to be with me during appointments so I don't need to be alone.

Thank you Eli for being such a good sport. You're so understanding for only being 3. I love you buddy!!

Thank you Cindi for everything you have done for us.

Thank you everyone for every word, thought, or comment of support. We cant thank you all enough!

Today I,m feeling blessed and thankful. So thank you ALL so much! even seeing how many people read this blog makes us feel supported. We appreciate you so much. THANK YOU!!

So far this year...

   Hey all!! Its been awhile since my last post. Sorry about that, we didn't really have much going on, so yay!!! No news is usually good news! We had a very good Christmas and new years! Hope you all did as well! we took a break from ASL classes over the holidays and we're now back at it! My family is really catching on fast and i'm so proud! :) We're still waiting on some things to be straightened out so Celina still hasn't had her blood test yet. Definitely a bit frustrating!! What do ya do I guess...

     A few updates with Celina. I'll start with the good stuff!! She now recognizes the sign for "milk" and when signed to her, she expects a bottle promptly! haha! It's quite cute actually!! She's also coming along sooo well in therapy! Just a few weeks ago she had VERY little head control. Now shes holding her entire upper body up all on her own!! She's come leaps and bounds in such a short amount of time, It just blows my mind! Shes getting way to big too fast. I feel like if I blink i'm gonna miss something. The first few months of her life has been sooo hectic and a whirlwind that I feel I've already missed so much! Definitely soaking everything in while we're sitting here with our hands tied, waiting to be able to go to appointments. Gotta find the good in every situation right?? I feel it's the only way to make it through.

    So about a week ago I was giving Celina a bath and noticed her spine felt weird. I checked it out in many different positions. Sitting, Laying flat, curled in a ball, and standing. Her spine looked and felt completely crooked. Just looking at it I could tell. So, not wanting to over react and to make sure I wasnt just crazy I called LH over to look at it as well. She agreed it was curved. My sisters also agreed. The Following Therapy session I had the Physical Therapist look at it as well. It's a definite "c" shaped spine. So we're working on exercises to keep her muscles from shortening on one side. Plus side; she's young and babies bones are "soft" so no need to completely freak out quite yet. Scoliosis is also connected to CHARGE so.... there we go. Celina's hips also constantly (and I mean constantly) click and pop in and out of place. So her PT said she will sleep in a hip brace that will hold her hips in their sockets as she's growing and it will hopefully resolve the issue. I believe its called Hip Dysplasia??? I could be wrong. Other than those two things, Celina has been great though!! hoping this is a trend in the year 2016!!! Wish us luck!! :) :) :)